13 June is observed as a International Albinism Awareness Day every year. The day aims to celebrate the human rights of persons with albinism worldwide. Each year events are held to educate people and celebrate people with albinism who continue to suffer all types of human rights violations.

Theme for 2021 International Albinism Awareness Day “Strength Beyond All Odds”.

History

In the mid-2000s, there had been reports of violent attacks on and murders of people with albinism in the Tanzania. The attacks were linked to beliefs that people with albinism had magical powers, so they were preyed upon for parts to be used as lucky charms and in occult rituals.

When in the year 2015 around 70 were killed and many more were harmed, the Tanzania Albinism Society and other NGOs lobbied for the rights of people with albinism. This led to the celebration of the first Albino Day on May 4th, 2006. The day was finally made official when the UN’s General Assembly adopted on December 18, 2014, a resolution that proclaimed June 13 as International Albinism Awareness Day with effect from 2015.

What is albinism?

The rare, non-contagious, genetically inherited difference present at birth. In almost all types of albinism, both parents must carry the gene for it to be passed on, even if they do not have albinism themselves. The condition is found in both sexes regardless of ethnicity and in all countries of the world. Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. As a result, almost all people with albinism are visually impaired and are prone to developing skin cancer. There is no cure for the absence of melanin that is central to albinism.